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At 11:05 pm on Jan. 31, 2002, I received
a call on my mobile phone from Dr. Hering at the University
of Minnesota. Though I had flown to Minneapolis for a evaluation
in October, it was the first time that I had spoken to him.
He asked if I was healthy and if I felt well and when I replied
yes, he said that they had an organ available and asked if
I could get there the next morning. As soon as I got off the
phone with him, I started calling airlines for the earliest
direct morning departure from Washington, DC to Minneapolis,
MN. I needed a direct flight to save time and, at that time,
there were no direct departures from Richmond.
I went for a run to make sure that I would qualify for the
weight limit, double-checked my luggage, and left at 2:30
am for the 100 mile drive to Dulles airport.
Everything worked out fabulously and on Feb. 1, 2002, I received
the first of two islet cell transplants at Fairview University
Hospital. The second occurred, in much the same way, on May
10, 2002.
This is a brief summary of the chronological order of events
surrounding the transplants:
| Sep
2000 |
Initial
contact/registration with ITN (Immune Tolerance
Network)
|
| Jun
2001 |
Contacted
and registered with DIIT (Diabetes Institute for
Immunology and Transplantation) at the University
of MN |
| Oct
15-16, 2001 |
Evaluation
at DIIT
|
| Dec
15, 2001 |
Placed
on transplant waiting list at the DIIT (effective
Jan. 1, 2002) |
| Jan
31, 2002 |
Called
by DIIT for transplant opportunity |
| Feb
1, 2002 |
Islet
cell transplant #1 (1st in US for Edmonton Multicenter
Protocol) |
| Feb
15 - May 4, 2002 |
Six
unsuccessful 2nd transplant calls or trips. |
| May
10, 2002 |
Second
islet cell transplant |
| Jul
8, 2002 |
Insulin
free |
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First, several thanks are in order.
I want to thank the following for their assistance and support:
God, my parents, my late grandmother, my sisters (especially
my sister Mary Jo, her husband Tim, and their family in Minnesota
for their flexibility in accommodating me, sometimes at the
last minute), my boys Christopher and William, and my friends.
A special thank you to Monique. Her support and love has
provided me with inspiration when things were difficult. She
is an amazing person and helps keep a positive spin on things
when they appear otherwise. My world would not be as bright
without her.
None of this would have been possible if not for the organ
donors. Though I do not know the donors, I would like to thank
them or their family for having the courage and foresight
to donate their organs. I encourage everyone to donate their
organs - it may save a life.
It has been a privilege to be involved with the staff at
the DIIT (Diabetes Institute for Immunology and Transplantation)
and the University of MN. They have been thorough in their
preparation, concerned about my condition, and professional
in their conduct. There are approximately 50 people involved
from DIIT in the procurement of the organ, islet cell isolation,
patient care, etc. It is not uncommon for their staff to work
through the night on islet cell isolation from a donated pancreas
and preparation for transplant. Dr. Bernhard Hering, the Director
of Islet Transplantation for DIIT at the Univ. of MN, is as
selfless and dedicated a physician as I have ever encountered
and it has been an honor to work with him.
I would also like to thank Capital One and the following
people at work for their assistance and flexibility: Susan
Kindervater, Alex Sun, Randy Wolfe, Mel Roach, and Don Swartz.
Thanks to Semon Lu for his timely assistance with this web
site. I would also like to thank Chris Brown for his help
and support.
I would like to express my gratitude to my Richmond-based
physicians, Drs. Robert Castellucci, Jami Lacey, and Jeffrey
Levin and their staff for their timely and personal assistance
in helping me to get qualified for this study.
I would also like to recognize the following sponsors and
coordinators for this study: the NIH (National Institutes
of Health), the JDRF (Juvenile Diabetes Research Foundation)
and the ITN (Immune Tolerance Network).
I would summarize the issues that have arisen post-transplant
into three categories:
1.) Physical/medical - reporting and managing any problems
that arise due to medication, procedure, etc. Since this is
a new protocol, unexpected situations may arise. The University
of MN/DIIT staff has made themselves readily accessible to
quickly address any issues. We remain in frequent communication
and they closely monitor the values of blood tests that are
performed every week in Richmond, VA. They are very responsive
and will err on the side of caution in managing treatment.
2.) Logistical - Periodic returns to the University of MN
hospital for evaluation, treatment, and medication is required.
Managing this around work, time with my sons, and other events
is challenging.
3.) Emotional - I have been able to reconcile the ups and
downs that have presented themselves. But it entails more
difficulty in assuaging the concern of parents, siblings,
and friends.
Lastly, my support goes out to diabetics and their family
and friends - especially to children (and their parents) who
have acquired type 1 diabetes. It is a challenge to manage
this disease, difficult to adapt, and easy to become discouraged.
It is difficult to maintain the constant commitment that is
necessary to cope with diabetes. I hope this information can
provide hope for diabetics and provide an impetus for better
self-management. A viable alternative treatment may not be
that far off.
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